August 30, 2015

Mats Wilander to Host Second Foundation Tennis Pro-Am to Benefit Epidermolysis Bullosa

Wilander Playing Tennis

(August 18, 2014) Mats Wilander and debra of America return to the West Side Tennis Club on Wednesday, August 27, 2014 for the 2nd Annual Mats Wilander Foundation Tennis Pro-Am. Play with former No. 1 player, Mats Wilander, Cameron Lickle of Wilander on Wheels, and other current and former tennis pros. Past pros have participated have included: John McEnroe, Jim Courier, Jonas Björkman, Thomas Blake, Thomas Johansson, Mikael Pernfors and Karel Nováček.

The Tennis Pro-Am is open to guests of all ages and playing levels. All proceeds benefit debra of America’s fight against Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™

DATE: Wednesday, August 27, 2014
TIME: 8AM – 4PM
VENUE: The West Side Tennis Club, 1 Tennis Place, Forest Hills, Queens, NY
BENEFITING: debra of America and the “Butterfly Children” with Epidermolysis Bullosa (EB)
BUY TICKETS AND LEARN MORE AT: www.debra.org/Tennis

YOUR TICKET INCLUDES:
– Playing with Mats Wilander, Former #1 Tennis Player in the World, 7 Grand Slam Singles Titles, & International Tennis Hall of Fame Member
– Hitting with Former & Current Tennis Pros on 3 Court Surfaces – Including Grass!
– Instructional Clinics, Competition Drills & Round-Robins
– Team Competition for Prizes (NEW!)
– Pro Meet-and-Greet
– Viewing a Professional Exhibition Match
– Continental Breakfast
– Barbecue Lunch with Beer, Wine & Cocktails

EXCLUSIVE ACE CHALLENGE – NEW!
Fundraise $500 or more using our Personal Fundraising Pages and get the exclusive opportunity to ace Mats Wilander at the Pro-Am. When you register for the event, you will automatically be set up with a Personal Fundraising Page to send to your friends and supporters. It’s that easy! If you raise $500 or more, you will win 2 serves to try to ace Mats Wilander. If you succeed, you will win a 15-minute private singles match with the 7-time Grand Slam Singles winner! (Email events@debra.org or call 212-868-1573 for more details.)

WHAT IS EB?

Epidermolysis Bullosa (EB) is a rare connective tissue disorder with many genetic and symptomatic variations. Yet, all of the variations share a common symptom of extremely fragile skin that blisters and tears with even the slightest friction or trauma and that is why children with EB are often called “Butterfly Children.” Because the disease also affects internal organs and bodily systems, the list of complications and symptoms from EB can be long and may require multiple interventions from a range of medical specialists. EB affects both genders and all racial and ethnic backgrounds equally. As of today, there is no cure or treatment.

ABOUT EPIDERMOLYSIS BULLOSA (EB)

Epidermolysis Bullosa (EB) is a rare genetic disorder in which children do not produce a vital protein to allow their skin to adhere to itself. Because their skin is so fragile, they are often known as ‘Butterfly Children.’ EB affects 1 out of every 20,000 live births in the United States and afflicts both genders and all racial and ethnic backgrounds equally. The most well-known and prominent manifestation of EB is blistering or tearing of the skin from any friction. That means taking off a shirt or a hug from a loved one is incredibly painful and causes the skin to peel away. Imagine your child suffering from a disease where more than 70% of their body is covered in open sores and blisters. There is no treatment or cure. Daily wound care, pain management and protective bandaging are the only options available. Learn more at debra.org

 

ABOUT THE MW FOUNDATION

SAVE IT. SEND IT. SHARE IT. are the ideals that the MW Foundation stands for, not only while on a tennis court but for everyday life. Mats Wilander started the Foundation in association with Wilander on Wheels, when his 15 year old son, Erik, was born with a mild form of Epidermolysis Bullosa. Mats has been instrumental in helping debra of America raise awareness for Epidermolysis Bullosa and funds for research and the supportive services and programs.

 

ABOUT DEBRA OF AMERICA

The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) was founded in 1980 and is the only national nonprofit dedicated to funding research for treatments and a cure, while providing supportive services and programs for those who suffer from the rare and painful genetic disorder, Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™ Visit debra.org

 

For more on last year’s event:

From  the December 2013 issue of Tennis Magazine, Mats Wilander helps lead the charge against what’s described as The Worst Disease You’ve Never Heard Of by Andrew Friedman

 

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Tennis Legends Gather At ‘No. 1 Celebration’ To Commemorate 40 Years Of Emirates ATP Rankings

 

From the ATP World Tour – AUGUST 24, 2013 -NEW YORK — ATP World Tour No. 1s past and present gathered to mark the 40th anniversary of the Emirates ATP Rankings at the ‘No. 1 Celebration’, Friday night at the Waldorf Astoria in New York City.

Ilie Nastase, who became the first ATP World No. 1 on 23 August 1973, was present to be honoured on the night, along with successors John Newcombe, Jimmy Connors, Bjorn Borg, John McEnroe, Ivan Lendl, Mats Wilander, Stefan Edberg, Jim Courier, Marcelo Rios, Carlos Moya, Yevgeny Kafelnikov, Gustavo Kuerten, Lleyton Hewitt, Juan Carlos Ferrero, Andy Roddick, Roger Federer, Rafael Nadal and Novak Djokovic.

The legends each took part in an on-stage Q&A with Justin Gimelstob and Guy Forget, sharing their experiences of reaching the summit of world tennis, before posing for a group photo with the ATP World Tour No. 1 trophy. Each year-end No. 1 received an engraved replica of the trophy.

No. 1 Celebration  Nadal, Federer

“It’s definitely an ultimate goal for any athlete, not just tennis players,” said current World No. 1 Djokovic. “Growing up, in early childhood, you are inspired to show that love and appreciation and passion towards the sport, and of course there is this big drive – waking up every morning, working so hard, developing skills to be No. 1 in the world. Not many players have achieved that and to sit with fellow champions, it’s an incredible feeling… I’m really honoured to be here.”

Watch Highlights Of No. 1 Celebration

Federer, who held the No. 1 ranking for a record 302 weeks, spoke about sharing the stage with the players who inspired him. “It was very important for me to have someone to look up to. Stefan was one of them, so it’s nice to see you here tonight and all the others players… We’ve put such huge effort in the game, and that’s a platform we can enjoy today. So it’s unbelievable. Thanks for being an inspiration Stefan, all of you here today.”

On a lighter note, a self-deprecating Roddick said, “It is an honour to be the worst player in the room.” Fellow American Courier added, “It’s a great honour to be here among friends. I dreamed of being in this arena, and to be part of this group is mind-blowing.”

Year-End No. 1s  McEnroe, Djokovic

The evening, part of the broader ATP Heritage programme, also included a tribute to former ATP Executive Chairman and President Brad Drewett, who passed away in May following a battle with Motor Neurone Disease. Drewett founded the ATP Heritage programme earlier this year.

“Brad cherished the history of the ATP and men’s professional tennis in general,” said Mark Young, CEO ATP Americas. “Tonight’s celebration is a reflection of that. It was his vision to see all the No. 1 players gathered together as we honoured their achievements.”

The ATP Heritage programme, with the support of its founding partner Rolex, will continue to serve as a platform to celebrate the rich history of the ATP and the remarkable achievements of the world’s greatest players throughout history.

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