(August 18, 2014) Mats Wilander and debra of America return to the West Side Tennis Club on Wednesday, August 27, 2014 for the 2nd Annual Mats Wilander Foundation Tennis Pro-Am. Play with former No. 1 player, Mats Wilander, Cameron Lickle of Wilander on Wheels, and other current and former tennis pros. Past pros have participated have included: John McEnroe, Jim Courier, Jonas Björkman, Thomas Blake, Thomas Johansson, Mikael Pernfors and Karel Nováček.
The Tennis Pro-Am is open to guests of all ages and playing levels. All proceeds benefit debra of America’s fight against Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™
DATE: Wednesday, August 27, 2014
TIME: 8AM – 4PM
VENUE: The West Side Tennis Club, 1 Tennis Place, Forest Hills, Queens, NY
BENEFITING: debra of America and the “Butterfly Children” with Epidermolysis Bullosa (EB)
BUY TICKETS AND LEARN MORE AT: www.debra.org/Tennis
YOUR TICKET INCLUDES:
– Playing with Mats Wilander, Former #1 Tennis Player in the World, 7 Grand Slam Singles Titles, & International Tennis Hall of Fame Member
– Hitting with Former & Current Tennis Pros on 3 Court Surfaces – Including Grass!
– Instructional Clinics, Competition Drills & Round-Robins
– Team Competition for Prizes (NEW!)
– Pro Meet-and-Greet
– Viewing a Professional Exhibition Match
– Continental Breakfast
– Barbecue Lunch with Beer, Wine & Cocktails
EXCLUSIVE ACE CHALLENGE – NEW!
Fundraise $500 or more using our Personal Fundraising Pages and get the exclusive opportunity to ace Mats Wilander at the Pro-Am. When you register for the event, you will automatically be set up with a Personal Fundraising Page to send to your friends and supporters. It’s that easy! If you raise $500 or more, you will win 2 serves to try to ace Mats Wilander. If you succeed, you will win a 15-minute private singles match with the 7-time Grand Slam Singles winner! (Email firstname.lastname@example.org or call 212-868-1573 for more details.)
WHAT IS EB?
Epidermolysis Bullosa (EB) is a rare connective tissue disorder with many genetic and symptomatic variations. Yet, all of the variations share a common symptom of extremely fragile skin that blisters and tears with even the slightest friction or trauma and that is why children with EB are often called “Butterfly Children.” Because the disease also affects internal organs and bodily systems, the list of complications and symptoms from EB can be long and may require multiple interventions from a range of medical specialists. EB affects both genders and all racial and ethnic backgrounds equally. As of today, there is no cure or treatment.
ABOUT EPIDERMOLYSIS BULLOSA (EB)
Epidermolysis Bullosa (EB) is a rare genetic disorder in which children do not produce a vital protein to allow their skin to adhere to itself. Because their skin is so fragile, they are often known as ‘Butterfly Children.’ EB affects 1 out of every 20,000 live births in the United States and afflicts both genders and all racial and ethnic backgrounds equally. The most well-known and prominent manifestation of EB is blistering or tearing of the skin from any friction. That means taking off a shirt or a hug from a loved one is incredibly painful and causes the skin to peel away. Imagine your child suffering from a disease where more than 70% of their body is covered in open sores and blisters. There is no treatment or cure. Daily wound care, pain management and protective bandaging are the only options available. Learn more at debra.org
ABOUT THE MW FOUNDATION
SAVE IT. SEND IT. SHARE IT. are the ideals that the MW Foundation stands for, not only while on a tennis court but for everyday life. Mats Wilander started the Foundation in association with Wilander on Wheels, when his 15 year old son, Erik, was born with a mild form of Epidermolysis Bullosa. Mats has been instrumental in helping debra of America raise awareness for Epidermolysis Bullosa and funds for research and the supportive services and programs.
ABOUT DEBRA OF AMERICA
The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) was founded in 1980 and is the only national nonprofit dedicated to funding research for treatments and a cure, while providing supportive services and programs for those who suffer from the rare and painful genetic disorder, Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™ Visit debra.org
For more on last year’s event: